The fact that I haven't posted anything on this blog for a while would suggest that I haven't got much to say or am a little slack...I think the opposite is true and I am writing this post sitting in my hospital room where I have been for the last four days and probably will be for another two?
I try on the whole to ignore my MS and work at everything as hard as I can, I also tend to sweep everyone else up in my desire to move things around or go to new places and get the house cleaned NOW! The problem is I don't slow down and my MS doesn't like it! I have been feeling more than a little off in the last few weeks but have pushed on through as one does, determined to finish something today in case I can't finish it tomorrow, when in actual fact that is working against me...soo hard to get my head around sometimes.
I have spent my time in hospital not doing too much and had to lie flat for 12 hours following a lumbar puncture and I so feel for Kerryanne!
I feel like a slob, have my oldest baggiest t-shirts on and haven't done my hair or my make-up, though I did put my earrings back on today.
The strange thing is I think I need to do this so often but preferrably before I need to be hospitalised for steroids as the world starts spinning and my legs start wobbling...It is a fine line...hmm funny that is a line from Chrisie Amplett who also has MS, I wonder what she was thinking then?
Today is also Sunday, which is the biggest day at Lilly Cottage and I can see the big rain clouds sweeping in, not so good for a Sunday at the markets. Darling Husband and Mother are manning the fort today and I sort of feel a bit weird about it, I love doing what I do but I simply can not keep up physically....it is a bit of a pain in the backside when your mind is willing and the rest is a bit ho hum.
Well I am writing the second part of this post from home now, in the luxury of my bedroom without the ding dong of buzzers going off up the corridor...now I have children, dogs barking and purring pussycats to entertain me.
Before I left hospital today, I made a long list of things I want to spend more time doing, the preparation and ideas I have for the Tea Party and ways that I can re-arrange the shop and the shop hours to be able to fit it all in without exhausting myself.
I will also need to schedule in some, sunshine, exercise and lots of fresh fruit and veges into the schedule too. I am not used to having to make a plan and stick to it, I like to be able to throw new challenges in at the last minute, it helps me to be a bit more creative or something....slowing down is not easy.
Being that I have to spend the next few days lying low and have to go back to the hospital for my infusion on Friday I shall try and work on my list of things to do everyday and things that don't really matter that much in the big scheme of things, things that are going to make me happy and relaxed and will helpfully keep that nasty MS at bay.
Lets see how I do...now pop that kettle on I am coming over to visit.
Kiss Noises Linda ( I do look like I am keeping up appearances at Lilly Cottage blog though....that makes me happy... http://lillycottage.typepad.com )